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Everything that we do, we do with integrity, compassion, commitment and creativity. How do we do what we do? With your help - we receive no government funding.

We tackle the problems of inborn conditions from all angles:

  • We fund vital medical research to understand, prevent, combat and treat inborn conditions
  • Our nurse service comforts, informs and supports families and those at risk
  • We give direct grants to affected families, funding vital equipment and assistance
  • We campaign to raise the level of awareness helping people to act, prior to pregnancy, to reduce the risks.

All of this is achieved with the help of the volunteers, supporters and businesses who donate time, money and goods so that we can achieve our goals. People who care. People like you.




Who are we?
Why do we care?
What can I do?
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